Today I received an interesting email from Sarah Brian who works with Caring4OurKids.
Their website describes them as " a group of parents who have children on the Autism Spectrum or who suffer from inflammatory diseases such as Chronic Fatigue Syndrome or Fibromyalgia. Recent studies suggest a link between these conditions. We each know how overwhelming it can be when your child is first diagnosed. As well, we understand the daily struggle as well as the joys of raising these very special children. We have come together to curate and create resources that have been helpful to us in the hopes that these will help other parents struggling to care for and to help their children thrive."
They had found our list of resources here but thought that there were other links that might be useful. The links they suggested are targetted towards children with ASD, and their families, but they include some very good recourses which would be useful to children with a range of different difficulties.
This site is a See Amazing in All Children, a nationwide initiative aimed at communities with children ages 2 to 5. Developed with input from parents, people who serve the autism community, and people with autism, See Amazing in All Children offers families ways to overcome common challenges and simplify everyday activities. At the same time, the project fosters an affirming narrative around autism for all families and kids.
About 5 percent of the population is estimated to suffer from some form of sensory processing disorder. Considering that everyone needs to shop at some point, there are tremendous numbers of people out and about on a daily basis who are struggling to cope with sensory overload. Their site includes good illustrations of what it can feel like for a child suffering from sensory overload and provides innovative suggestions to support them.
The DO-IT (Disabilities, Opportunities, Internetworking, and Technology) Center is dedicated to empowering people with disabilities through technology and education. It promotes awareness and accessibility—in both the classroom and the workplace—to maximize the potential of individuals with disabilities and make our communities more vibrant, diverse, and inclusive.
This is an American based site created by lawyers who provide information and support about the legal support available to families of children with SEN. However, this may have limited information for those in the UK